My Pregnancy – Week 28 with Antiphospholipid Syndrome

This week was a bit like those moments when two buses come along at once after you have been waiting for what seems like ages for just one. Out of the five working days of the week I had a pregnancy related appointment on four of them. The below are extracts from my journal which I have been writing each week, I am currently 31 weeks pregnant so need to do a bit of catching up!

Copy of Copy of 14 Weeks Pregnant withAntiphospholipid syndrome-11

I’ve been looking forward to seeing pip at our 28 week growth scan. Although I wasn’t really sure what to expect having a straight forward pregnancy last time. The scan itself was quite short, of course after the 20 week one which seems to go on for ages it probably was always going to appear that way. The sonographer quickly went through all the measurements she needed to take – baby’s head, tummy (he’s on the fat side!) and legs. Everything was just about normal or slightly larger/longer. I was measuring at 28wk + 6 despite really being 28 weeks exactly, and approximate weight 2lb 12oz. Small baby, at this moment in time I have my reservations! He was pretty much the same as Monkey at the 20 week scan and he was 9lb 2oz albeit a little over cooked!! I forgot to ask about predictions on birth weight but if we say half a pound a week in the last trimester then he’s probably going to be in the region of 8lb 12oz. We have another growth scan at 34 weeks so it will be interesting to see how he has grown. It was nice getting more pictures though!

After the scan we went to see the consultant, I was expecting to see the same lady as last time. Although apparently not. I didn’t see the haematologist either as originally planned. It was only when we were leaving did they really seem to worry about it trying to crow bar me into another appointment with the haematologist and then realising 37 weeks is probably too late! The consultant himself was very friendly but left me with very little confidence in anything he was saying. My previous consultant turned out to be his boss and he kept nipping next door to speak to her. Initially he said I would be able to go past my due date, really? That was all good with me as I don’t really want to be induced but from everything I had read and been told still birth is a real threat so they induce at term. So 12 days past didn’t really sit with me, sure enough after he had checked sweep at 39 weeks (so glad I booked that extra week off) and induction at term. I wasn’t disappointed I want a healthy baby so whatever it takes although since Monkey started naturally at 42+2 good luck with the sweep!

We touched on birthing options, he said he’s open to me being in the water for labouring (if he’s on) but due to Monkeys shoulder distorsia I have to get out to have the baby. It would be my preferred option for pain relief since it worked well for me last time. Espically as he then threw in potentially taking the Heparin would mean no epidural. Sorry!! Although again I would prefer no epidural but there is no way on earth I am going through the McRoberts position without proper pain relief! Of course my panic is probably an over reaction if pips too big it will be c-section anyway rather than risk another shoulder distorsia. Which I have been assured is very rare. So it didn’t really leave me with much other than everything I didn’t want was likely to happen. If you could read my previous birthing plan (which I may get round to typing up) you would understand why this is a little frustrating. I keep reminding myself to focus on having a healthy baby and trying not to throw the towel in and just elect for a c-section. Before you ask gas and air made me throw up last time round…

To add to my grumpiness with the whole experience when I asked about medication post birth for the sticky blood his simple reaction was – well you’ve not had a blood clot so after taking the Heprin for 6 weeks there will be no more medication. At this point I gave up. I appreciate what he’s saying but sticky blood makes your blood clot so there is a chance a higher chance than most that at somepoint in the future it will do just that. I don’t really want to worry about the implications of what that means so if we don’t get a satisfactory response or a referral to the haematologist then I will be making the most of my private medical and getting referred.

If I am honest the rest of the week went by in a bit of a blur. I had my glucose load test on the Wednesday, I quite like original lucozade so it was no hardship although trying to drink it quickly was interesting. I also got my thyroid tested at the same time. They both came back fine in the follow up midwife appointment on the Thursday. On Friday I had the hooping cough jab. I didn’t realise it was a combined jab and is actually the same as the preschool jab that Monkey had a couple of months ago. Monkey was with me and was fascinated by the whole process, especially when I was ‘brave’. It lead to a whole discussion in the car on the way out that afternoon about not being scared of needles and injections and how I would like him to be very brave and have the meningitis vaccine. Bonus. Other than seeing Pip on screen that’s probably the most positive thing that came out of this week. Least I know I will be seeing my lady consultant next time!

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31 Comments

  1. funkymrsknutts

    You poor love. What a week.
    I’m glad all is well with baby (Pip) and you’re feeling ok in yourself, though I can imagine the worry and the stress of this week haven’t been particularly helpful.
    I hope you get more joy with your lady consultant…
    Birth plans are funny things. I didn’t do one with any of my 3 as I knew after my first one, plans quickly go out the window. Just have faith in the fact you’re in safe hands, be sure of what you don’t want and go with it.
    You’ll do great and I’ll be here reading, as well as keeping my fingers crossed for you. Well done for being brabe with the jabs too.xx *Virtual sticker sent* x

  2. Hot Pink Wellingtons

    I was under consultant care for my pregnancy and I found it to be a frustrating experience too. So many contradictory responses, and lots of giving me scenarios that made me worry, but with no offer of what they were going to do to try to avoid those scenarios. I hope your next consultant appointment is more reassuring. Glad the rest of your tests all came back fine – jealous you got to drink a lucozade! I had to drink literally glucose dissolved in hot water, it was pretty hard to get down!

  3. Angela Milnes

    Oh I can totally relate to the continuous appointments…thats my life lol! It’s exciting following you week by week and reading how your going. Sorry your doctor sounds like a plonker re, the sticky blood situation. After what ive seen recently on meningitis and from personal experience I would do the men B vaccine if it was available to my child! Angela

  4. Kate Tunstall, Refined Prose

    Reading this brings back my daughter’s birth… I didn’t have the same issues as you, but I did have growth scans and a very sudden induction. There’s nothing more frightening than your baby’s safe arrival being placed in someone else’s hands. I suppose we have to trust they are the best hands and that they know what they’re doing – and if we have any doubts then definitely get a second opinion!

    I hope all goes well and that you can avoid the horrors of induction! (my epidural failed…) Looking forward to hearing about your lovely new addition to your family soon! Xxx

  5. lizzie ( firstooth )

    I really feel for you my lovely. It’s incredibly frustrating and I’m frustrated for you. We had a very similar experience and the consultant I saw was always different and left me feeling confused and anxious each time. I actually cried regularly at the apt, they just didn’t seem to care. It’s worrying because your children are your world and when people shake it off, it makes their life seem less important. Which it isn’t of course. I hope all these apts start getting better got you towards labour day. I was incredibly pushy at the end as to what I wanted and what they were going to do, I think that’s the only way sometimes x

  6. islandliving365

    Consultant care can be so frustrating. I had a different consultant everytime I went as was told different things overtime, which contradicted what I had been told last time. Grrr. In hindsight I wish that I had spoken up and pointed this out. You sound like you are going in prepared which is great and I would say if there is something you don’t agree with then fight for it! #Bloggerclubuk

  7. Mama

    Oh my goodness. It all sounds terrifying. I’m glad at least you are informed and I hope the best case scenarios happen for you

    Thanks for hosting #bloggersclubuk

  8. tammymum

    I can relate to this, had several consultant appointments, scans etc throughout both of mine – it can be a little over whelming at times but keep going, it gets forgotten about when the little one arrives, it’s just tough when you’re going through it. Hope things start to go a little smoother for you, look forward to hearing the next update #bloggerclubuk xx

  9. Coombe Mill

    Sounds like a bit of a roller coaster ride with the consultant, gas and air made me throw up too so I’d stay away from that one. Hope you get your old consultant next time and glad all is well with the baby.

  10. hibabyblog

    Ah this all sounds a bit rubbish with the consultant being all over the place. I hope next time you’re in things are more organised and you see the team you’re used to. Not a great time to be presented with a lot of uncertainties. xx

  11. wendy

    Aww, this sounds like a stressful week, I hope you are ok! Hopefully someone will be able to give you some more definite answers. Atleast you got to see your little baba on the scan again. I hope the rest of your pregnancy goes well and baby arrives safely.xx #BloggerClubUK

  12. anywaytostayathome

    It’s so frustrating when you know that your consultant doesn’t really know what they are telling you and to leave having no faith in what you were told is awful. Stick to your guns, it’s great that you can fall back on your Private Medical should you need to!
    Great that you were able to chat to Pip about injections though, very handy! #BloggerClubUK

  13. Kerry-Ann

    So sorry to hear you’ve had such a tough week and with a consultant has not filled you with much confidence. I wish you all the best in the remaining weeks ahead! x #BloggerClubUK

  14. The Pramshed

    Sorry you’ve had a tough week, and fingers crossed the last few weeks of your pregnancy go smoothly. I need to read your previous blog posts to understand what antiphospholipid syndrome is (I just said that out loud – luckily baby is in bed and husband is still at work). Claire x #BloggerClubUK

  15. Someone's Mum

    Ahhh I have high risk pregnancies due to severe GD and it is so tough when you get appointments like that all the time. I actually had one more junior consultant try to put me on a drug that my regular senior consultant told me not to take. It makes you lose confidence in everyone. Good luck getting all the future apps sorted. #BloggerClubUK

  16. Idaintyit

    I hope the rest of the pregnancy goes more smoothly for you. It must be so tough have different people tell you different things

  17. min1980

    Best of luck with the rest of your pregnancy. I need to read back you find out what antiphospolid syndrome is, I think! #BloggerClubUK

  18. Emma (@MeBeeandBo)

    Wow, what a busy week! I’d hate to have a medical professional who didn’t know what they were talking about… I’d have probably just asked outright to go back to his boss and have the meeting with them! I hope it goes a bit more smoothly for you from now on. #BloggerClubUK

  19. Becky, Cuddle Fairy

    Oh gosh Clare, this must be so frustrating & worrying. It’s really annoying when you don’t see your usual consultant. I’m glad they have a plan in place but I hope you can get pain relief – that you are comfortable with. I’d keep asking about the treatment post birth & ask a few different people if you need to because your health is everything. It’s lovely you got to see Pip – you won’t feel now until baby is here! #bloggerclubuk

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